Threatening Happiness (04:11)
The men and women diagnosed with LAM embark on a long and unexpected journey. A woman recalls being diagnosed with lymphangioleiomyomatosis.
Orphan diseases affect more than 25 million Europeans and over 30 million in North America. Dr. Simon Johnson discusses cell multiplication throughout the stages of LAM. Havi Carel discusses her LAM diagnosis.
Coping With Lymphangioleiomyomatosis (03:00)
Medicine offers no cure for Havi Carel. She discusses managing her emotions and the social dimensions of a LAM diagnosis. She faces the difficulty of living with an orphan disease. Samir Okasha, Carel's husband, discusses trying to have a fulfilling life.
Diagnosis, Lymphangioleiomyomatosis (03:55)
Amy Farber, founder of LAM Treatment Alliance, discusses the impact of LAM on her personal life and the reality of her treatment options. LAM frequently strikes women of childbearing age.
LAM Treatment Alliance (01:55)
Amy Farber discusses her association dedicated to raising money for research to find a cure for lymphangioleiomyomatosis and the lack of a disease model. Farber's husband, Dr. Nurok, discusses the challenges LAM communication.
All Countries Have Orphan Diseases (01:34)
Research into lymphangioleiomyomatosis (LAM) is relatively new. Within the last eight years, the abnormal gene has been identified and the protein function of the gene has been characterized. See a CT scan of lungs with LAM. Experts reflect on the complications with studying LAM.
LAM After a Lung Transplant (03:25)
There is no cure or treatment to slow the progress of lymphangioleiomyomatosis; lung transplant is the only option after lung failure. Corine Durand and her husband recall learning receiving a LAM diagnosis. Corine discusses her slow approach to having a lung transplant.
Lung Transplants Offer Hope for LAM Patients (02:38)
Corine Durand tests her lung capacity. Professor Jean-Francois Cordier discusses the long-term outcome of lung transplants for patients with lymphangioleiomyomatosis.
A Relationship With an Orphan Disease (LAM) (03:55)
Havi Carel has little more than 20% of her lung capacity and physical tasks require great effort. See Carel teach a class. Carel discusses turning lymphangioleiomyomatosis into a practical problem and achieving well-being with an illness.
Measured Happiness (01:22)
Nicholas Chistakis reflects on the idea of happiness for patients living with a long-term illness. Sonja Lyubomirsky discusses the different patient reactions to a life threatening diagnosis.
Adapting to an Illness (03:43)
Havi Carel accepts the limits enforced by LAM (lymphangioleiomyomatosis) and adjusts her lifestyle. Carel finds new ways to experience the feeling of well-being, like participating in yoga.
Facing Illness and Self (05:59)
Corine Durand discusses rediscovering her identity after the limitations of a LAM diagnosis. Havi Carel states that she has become more discerning and happy since her lymphangioleiomyomatosis diagnosis. Amy Farber discusses searching for peace when her body and social world conflict.
In France, FLAM helps recently diagnosed women confront lymphangioleiomyomatosis (LAM). Women reflect on joining the group and facing the idea of a lung transplant. Corine Durand discusses the importance of informing doctors about LAM.
Finding Gene Information (01:49)
Professor Jean-François Cordier reflects on the importance of studying rare diseases; many diseases have a gene abnormality. An expert discusses obtaining funding for medical research and the far reaching benefits of researching LAM.
Hope for LAM Patients (03:45)
Havi Carel is on the waiting list for a lung transplant. Corine Durand's lung capacity holds steady. She reflects on the ability to breathe after her lung transplant; she is now a choir member.
Lymphangioleiomyomatosis Uncovers Who You Are (03:20)
Professor Jean-François Cordier discusses courage in the face of an illness and LAM patients' desire to act. Amy Farber and Corine Durand discuss their changed perspectives. Havi Carel discusses being happy in the present.
Achieving Well-Being (01:25)
An expert reflects on the outlooks of each woman in this video living with lymphangioleiomyomatosis (LAM).
Credits: Living and Breathing: Coping with LAM and Other Chronic Illnesses (00:60)
Credits: Living and Breathing: Coping with LAM and Other Chronic Illnesses
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